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The Blog
Dec 15, 20224 min read
Part 1 of Zayn’s heart journey: He was perfectly imperfect
Hi, my name is Suzie, I am a Mama to 3 amazing kids. Makenna 12, Giancarlo 11, and my heart warrior Zayn 2. Our life has been pretty...
Jun 10, 20224 min read
Home Sweet Home
On January 13th our sweet Gracie was discharged from the hospital. When you are in and out of the hospital for as long as we were, you...
May 2, 20224 min read
Moving In a Positive Direction
Gracie was slowly coming out of the delusional state she was in, had all of her chest tubes still in place BUT at least I could hold my...
Mar 30, 20223 min read
Becca's Story Finale: Life post Transplant
JR had his 3 month Heart Cath and when he was brought back from the recovery we were told that all looked good all of his pressures were...
Mar 23, 20224 min read
Becca's Story Part 5: Post Transplant Journey Begins
After JR was back up to his room we left the hospital at 12:30, we were back at the hospital by 7:30 because we didn’t want to miss when...
Mar 22, 20225 min read
Our Days Home Were Coming To An End
If you are not caught up on my blog at this time, GO BACK NOW! Nothing is going to make sense moving forward as I talk more about the...
Mar 9, 20223 min read
Becca's Story Part 3: The Waiting Game
After we had gotten the news that JR was officially on the Transplant list time seemed to slow down. During this time there was not a...
Feb 9, 20223 min read
Tyler Story Part 2: Surgery Day
February 21, 2020. It was game day. It was finally time for surgery. Emmy was in surgery from 7:00 am-4:15 pm. She was on bypass for five...
Feb 2, 20224 min read
Tylers Story Part 1: A Complex Form of Heart Disease
At 17 weeks, Emmy was diagnosed with Dextrocardia with Situs Inversus. In the simplest of terms, her heart is on the right side of her...
Jan 26, 20229 min read
Jessica's Story Part 5: Hudson’s Heart
The first few weeks of being home with Hudson were a huge adjustment. Due to sickness in general and Hudson having a compromised immune...
Jan 21, 20228 min read
Everything was perfect, Until September 9th.
Gracie was weening all of her meds, off oxygen, and overall doing amazing. But something was still off and we were about to find out exactly
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