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The Blog
Feb 24 min read
G-tube or no G-tube? That was the question.
In honor of Heart Month and Wear Red Day for our heart warriors, I wanted to get a blog out!! It has been a while since I wrote about our...
Dec 15, 20224 min read
Part 1 of Zayn’s heart journey: He was perfectly imperfect
Hi, my name is Suzie, I am a Mama to 3 amazing kids. Makenna 12, Giancarlo 11, and my heart warrior Zayn 2. Our life has been pretty...
Jun 22, 20226 min read
Morgans Story Part 3: The Golden Month
On October 26th, 2021, Hank was scheduled to have his first open-heart surgery, the Glenn. As I mentioned in my previous post, his...
Jun 8, 20226 min read
Morgans Story Part 2: Hank Our Heart Warrior
At 8:18 pm on June 22nd, Hank made his way into this big, wonderous world. He was born by c-section after a failed attempt at starting...
Jun 1, 20226 min read
Morgans story Part 1: Hank the Heart Angel- The Before
My name is Morgan, and I’m the mother of a beautiful heart angel, Hank. My family lives in Boise Idaho. While you’re reading this, there...
May 2, 202211 min read
Kayla's Story Finale: A Dream Come True
July 1st, 2021. 8 months and 4 days old. 246 days we waited to bring our bundle of joy home. The night goes without a problem and we make...
May 2, 20224 min read
Moving In a Positive Direction
Gracie was slowly coming out of the delusional state she was in, had all of her chest tubes still in place BUT at least I could hold my...
Apr 21, 20227 min read
Kayla's Story Part 3: An Uncertain Future
My heart sank when I heard that my baby was going into unexpected heart surgery. This was not a part of the plan that was discussed...
Apr 6, 20228 min read
Kayla's Story Part 1: My Rainbow Baby
I remember the day I decided on my future son’s name. Luka. What a cute name right? He was named before he was even born. I was...
Apr 4, 20225 min read
Surgery day #3
We arrived at the hospital bright and early so Gracie could be admitted to pre-op and we could get a few extra snuggles before they took...
Mar 28, 20224 min read
It Was Time...
I took Gracie in for our normal follow-up with cardiology. This meant another echo to check on her heart pressures and a lung profusion...
Mar 23, 20224 min read
Becca's Story Part 5: Post Transplant Journey Begins
After JR was back up to his room we left the hospital at 12:30, we were back at the hospital by 7:30 because we didn’t want to miss when...
Mar 16, 20224 min read
Becca's Story Part 4: TRANSPLANT DAY
How do you prepare yourself for your little 2 month old to be getting a Heart Transplant??? Well to be honest I have no idea! I don't...
Mar 14, 20226 min read
The Hard Conversations...
We planned a day for my two brothers, nieces, and my sister-in-law to meet Gracie. They had previously met Paisley very briefly. We met...
Mar 9, 20223 min read
Becca's Story Part 3: The Waiting Game
After we had gotten the news that JR was officially on the Transplant list time seemed to slow down. During this time there was not a...
Mar 7, 20227 min read
Frequent Flyer at the ER
Come October Gracie was still home, happy and working on building up her feeds. She was currently at 65mL/ feed 4x a day. It was still...
Feb 23, 20224 min read
Becca's Story Part 1: The Light in the Darkness, Only to Turn Dark Again
It was March 2020 and In the thick of COVID-19. My husband is a firefighter and first responder. With his call volume for civil on the...
Feb 15, 20224 min read
Tyler's Story Finale: Emmy Recovers
Even though it didn’t look good on the surface, I knew in my heart that Emmy was going to be okay. I never once doubted that truth. “Your...
Feb 9, 20223 min read
Tyler Story Part 2: Surgery Day
February 21, 2020. It was game day. It was finally time for surgery. Emmy was in surgery from 7:00 am-4:15 pm. She was on bypass for five...
Feb 2, 20224 min read
Tylers Story Part 1: A Complex Form of Heart Disease
At 17 weeks, Emmy was diagnosed with Dextrocardia with Situs Inversus. In the simplest of terms, her heart is on the right side of her...
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