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The Blog
Aug 17, 20228 min read
Every Day Magic
Quick update: After taking some much-needed time off I am ready to get back to blogs every two weeks. They will be posted every...
Jun 22, 20226 min read
Morgans Story Part 3: The Golden Month
On October 26th, 2021, Hank was scheduled to have his first open-heart surgery, the Glenn. As I mentioned in my previous post, his...
May 2, 202211 min read
Kayla's Story Finale: A Dream Come True
July 1st, 2021. 8 months and 4 days old. 246 days we waited to bring our bundle of joy home. The night goes without a problem and we make...
Apr 21, 20227 min read
Kayla's Story Part 3: An Uncertain Future
My heart sank when I heard that my baby was going into unexpected heart surgery. This was not a part of the plan that was discussed...
Apr 18, 20226 min read
Unexpected Procedures
Staying the night with Grace was... VERY stressful. I knew the beeps and alarms like the back of my hand by now. I knew if things were...
Mar 7, 20227 min read
Frequent Flyer at the ER
Come October Gracie was still home, happy and working on building up her feeds. She was currently at 65mL/ feed 4x a day. It was still...
Feb 21, 20225 min read
If Gracie Can Do This, So Can I
We were re-admitted on a Sunday and were hoping that it was simply a fluid in her lungs, a few extra doses of Lasix (diuretic) and we'd...
Feb 14, 20225 min read
The Start to Another Nightmare
I was rushing Gracie to the ER. I continued to look back in the rearview to her baby mirror to make sure that she was still breathing. My...
Feb 9, 20223 min read
Tyler Story Part 2: Surgery Day
February 21, 2020. It was game day. It was finally time for surgery. Emmy was in surgery from 7:00 am-4:15 pm. She was on bypass for five...
Feb 7, 20225 min read
We were finally home as a family of 4, or so we thought
To say we did not think this day would ever get there n then here we were a family of 4 and our 3 pups. The pups were very interested in...
Feb 2, 20224 min read
Tylers Story Part 1: A Complex Form of Heart Disease
At 17 weeks, Emmy was diagnosed with Dextrocardia with Situs Inversus. In the simplest of terms, her heart is on the right side of her...
Jan 31, 20226 min read
Gracie was coming home
We received the worst news we absolutely could to this point. We had been through open-heart surgery, sepsis, and countless more things...
Jan 26, 20229 min read
Jessica's Story Part 5: Hudson’s Heart
The first few weeks of being home with Hudson were a huge adjustment. Due to sickness in general and Hudson having a compromised immune...
Jan 21, 20228 min read
Everything was perfect, Until September 9th.
Gracie was weening all of her meds, off oxygen, and overall doing amazing. But something was still off and we were about to find out exactly
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