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The Blog
Dec 15, 20224 min read
Part 1 of Zayn’s heart journey: He was perfectly imperfect
Hi, my name is Suzie, I am a Mama to 3 amazing kids. Makenna 12, Giancarlo 11, and my heart warrior Zayn 2. Our life has been pretty...
Aug 17, 20228 min read
Every Day Magic
Quick update: After taking some much-needed time off I am ready to get back to blogs every two weeks. They will be posted every...
Mar 7, 20227 min read
Frequent Flyer at the ER
Come October Gracie was still home, happy and working on building up her feeds. She was currently at 65mL/ feed 4x a day. It was still...
Feb 28, 20225 min read
1,000 Appointments
We were home, happy and settling into our new norm for what could be a few days or a few months but either way, we were going to enjoy...
Jan 31, 20226 min read
Gracie was coming home
We received the worst news we absolutely could to this point. We had been through open-heart surgery, sepsis, and countless more things...
Jan 26, 20229 min read
Jessica's Story Part 5: Hudson’s Heart
The first few weeks of being home with Hudson were a huge adjustment. Due to sickness in general and Hudson having a compromised immune...
Jan 21, 20228 min read
Everything was perfect, Until September 9th.
Gracie was weening all of her meds, off oxygen, and overall doing amazing. But something was still off and we were about to find out exactly
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