top of page
The Blog
Jun 22, 20226 min read
Morgans Story Part 3: The Golden Month
On October 26th, 2021, Hank was scheduled to have his first open-heart surgery, the Glenn. As I mentioned in my previous post, his...
Jun 8, 20226 min read
Morgans Story Part 2: Hank Our Heart Warrior
At 8:18 pm on June 22nd, Hank made his way into this big, wonderous world. He was born by c-section after a failed attempt at starting...
Jun 1, 20226 min read
Morgans story Part 1: Hank the Heart Angel- The Before
My name is Morgan, and I’m the mother of a beautiful heart angel, Hank. My family lives in Boise Idaho. While you’re reading this, there...
May 2, 20224 min read
Moving In a Positive Direction
Gracie was slowly coming out of the delusional state she was in, had all of her chest tubes still in place BUT at least I could hold my...
Apr 21, 20227 min read
Kayla's Story Part 3: An Uncertain Future
My heart sank when I heard that my baby was going into unexpected heart surgery. This was not a part of the plan that was discussed...
Apr 6, 20228 min read
Kayla's Story Part 1: My Rainbow Baby
I remember the day I decided on my future son’s name. Luka. What a cute name right? He was named before he was even born. I was...
Mar 28, 20224 min read
It Was Time...
I took Gracie in for our normal follow-up with cardiology. This meant another echo to check on her heart pressures and a lung profusion...
Mar 16, 20224 min read
Becca's Story Part 4: TRANSPLANT DAY
How do you prepare yourself for your little 2 month old to be getting a Heart Transplant??? Well to be honest I have no idea! I don't...
Mar 14, 20226 min read
The Hard Conversations...
We planned a day for my two brothers, nieces, and my sister-in-law to meet Gracie. They had previously met Paisley very briefly. We met...
Mar 9, 20223 min read
Becca's Story Part 3: The Waiting Game
After we had gotten the news that JR was officially on the Transplant list time seemed to slow down. During this time there was not a...
Mar 7, 20227 min read
Frequent Flyer at the ER
Come October Gracie was still home, happy and working on building up her feeds. She was currently at 65mL/ feed 4x a day. It was still...
Mar 1, 20225 min read
Becca's Story Part 2: There is No Way I Am Having This Baby Today!
To say this second pregnancy was easy would be a big FAT lie. I started showing by 10 weeks(maternity clothes instantly), I had horrible...
Feb 28, 20225 min read
1,000 Appointments
We were home, happy and settling into our new norm for what could be a few days or a few months but either way, we were going to enjoy...
Feb 21, 20225 min read
If Gracie Can Do This, So Can I
We were re-admitted on a Sunday and were hoping that it was simply a fluid in her lungs, a few extra doses of Lasix (diuretic) and we'd...
Feb 15, 20224 min read
Tyler's Story Finale: Emmy Recovers
Even though it didn’t look good on the surface, I knew in my heart that Emmy was going to be okay. I never once doubted that truth. “Your...
Feb 14, 20225 min read
The Start to Another Nightmare
I was rushing Gracie to the ER. I continued to look back in the rearview to her baby mirror to make sure that she was still breathing. My...
Feb 9, 20223 min read
Tyler Story Part 2: Surgery Day
February 21, 2020. It was game day. It was finally time for surgery. Emmy was in surgery from 7:00 am-4:15 pm. She was on bypass for five...
Feb 7, 20225 min read
We were finally home as a family of 4, or so we thought
To say we did not think this day would ever get there n then here we were a family of 4 and our 3 pups. The pups were very interested in...
Feb 2, 20224 min read
Tylers Story Part 1: A Complex Form of Heart Disease
At 17 weeks, Emmy was diagnosed with Dextrocardia with Situs Inversus. In the simplest of terms, her heart is on the right side of her...
Jan 31, 20226 min read
Gracie was coming home
We received the worst news we absolutely could to this point. We had been through open-heart surgery, sepsis, and countless more things...
bottom of page