The Blog

It has been 1,336 days since Gracie was admitted to the hospital, 1923840 minutes since Gracie was admitted, four birthdays, three...

In honor of Heart Month and Wear Red Day for our heart warriors, I wanted to get a blog out!! It has been a while since I wrote about our...

Hi, my name is Suzie, I am a Mama to 3 amazing kids. Makenna 12, Giancarlo 11, and my heart warrior Zayn 2. Our life has been pretty...

Quick update: After taking some much-needed time off I am ready to get back to blogs every two weeks. They will be posted every...

On October 26th, 2021, Hank was scheduled to have his first open-heart surgery, the Glenn. As I mentioned in my previous post, his...

On January 13th our sweet Gracie was discharged from the hospital. When you are in and out of the hospital for as long as we were, you...

At 8:18 pm on June 22nd, Hank made his way into this big, wonderous world. He was born by c-section after a failed attempt at starting...

My name is Morgan, and I’m the mother of a beautiful heart angel, Hank. My family lives in Boise Idaho. While you’re reading this, there...

July 1st, 2021. 8 months and 4 days old. 246 days we waited to bring our bundle of joy home. The night goes without a problem and we make...

Gracie was slowly coming out of the delusional state she was in, had all of her chest tubes still in place BUT at least I could hold my...

My heart sank when I heard that my baby was going into unexpected heart surgery. This was not a part of the plan that was discussed...

I remember the day I decided on my future son’s name. Luka. What a cute name right? He was named before he was even born. I was...

We arrived at the hospital bright and early so Gracie could be admitted to pre-op and we could get a few extra snuggles before they took...

JR had his 3 month Heart Cath and when he was brought back from the recovery we were told that all looked good all of his pressures were...

I took Gracie in for our normal follow-up with cardiology. This meant another echo to check on her heart pressures and a lung profusion...

After JR was back up to his room we left the hospital at 12:30, we were back at the hospital by 7:30 because we didn’t want to miss when...

If you are not caught up on my blog at this time, GO BACK NOW! Nothing is going to make sense moving forward as I talk more about the...

How do you prepare yourself for your little 2 month old to be getting a Heart Transplant??? Well to be honest I have no idea! I don't...

We planned a day for my two brothers, nieces, and my sister-in-law to meet Gracie. They had previously met Paisley very briefly. We met...

After we had gotten the news that JR was officially on the Transplant list time seemed to slow down. During this time there was not a...