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The Blog
Jun 10, 20224 min read
Home Sweet Home
On January 13th our sweet Gracie was discharged from the hospital. When you are in and out of the hospital for as long as we were, you...
Apr 18, 20226 min read
Unexpected Procedures
Staying the night with Grace was... VERY stressful. I knew the beeps and alarms like the back of my hand by now. I knew if things were...
Mar 9, 20223 min read
Becca's Story Part 3: The Waiting Game
After we had gotten the news that JR was officially on the Transplant list time seemed to slow down. During this time there was not a...
Mar 7, 20227 min read
Frequent Flyer at the ER
Come October Gracie was still home, happy and working on building up her feeds. She was currently at 65mL/ feed 4x a day. It was still...
Feb 28, 20225 min read
1,000 Appointments
We were home, happy and settling into our new norm for what could be a few days or a few months but either way, we were going to enjoy...
Feb 21, 20225 min read
If Gracie Can Do This, So Can I
We were re-admitted on a Sunday and were hoping that it was simply a fluid in her lungs, a few extra doses of Lasix (diuretic) and we'd...
Feb 14, 20225 min read
The Start to Another Nightmare
I was rushing Gracie to the ER. I continued to look back in the rearview to her baby mirror to make sure that she was still breathing. My...
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