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The Blog
Dec 15, 20224 min read
Part 1 of Zayn’s heart journey: He was perfectly imperfect
Hi, my name is Suzie, I am a Mama to 3 amazing kids. Makenna 12, Giancarlo 11, and my heart warrior Zayn 2. Our life has been pretty...
Aug 17, 20228 min read
Every Day Magic
Quick update: After taking some much-needed time off I am ready to get back to blogs every two weeks. They will be posted every...
Jun 22, 20226 min read
Morgans Story Part 3: The Golden Month
On October 26th, 2021, Hank was scheduled to have his first open-heart surgery, the Glenn. As I mentioned in my previous post, his...
Jun 10, 20224 min read
Home Sweet Home
On January 13th our sweet Gracie was discharged from the hospital. When you are in and out of the hospital for as long as we were, you...
May 2, 202211 min read
Kayla's Story Finale: A Dream Come True
July 1st, 2021. 8 months and 4 days old. 246 days we waited to bring our bundle of joy home. The night goes without a problem and we make...
May 2, 20224 min read
Moving In a Positive Direction
Gracie was slowly coming out of the delusional state she was in, had all of her chest tubes still in place BUT at least I could hold my...
Apr 21, 20227 min read
Kayla's Story Part 3: An Uncertain Future
My heart sank when I heard that my baby was going into unexpected heart surgery. This was not a part of the plan that was discussed...
Apr 18, 20226 min read
Unexpected Procedures
Staying the night with Grace was... VERY stressful. I knew the beeps and alarms like the back of my hand by now. I knew if things were...
Mar 30, 20223 min read
Becca's Story Finale: Life post Transplant
JR had his 3 month Heart Cath and when he was brought back from the recovery we were told that all looked good all of his pressures were...
Mar 28, 20224 min read
It Was Time...
I took Gracie in for our normal follow-up with cardiology. This meant another echo to check on her heart pressures and a lung profusion...
Mar 23, 20224 min read
Becca's Story Part 5: Post Transplant Journey Begins
After JR was back up to his room we left the hospital at 12:30, we were back at the hospital by 7:30 because we didn’t want to miss when...
Mar 16, 20224 min read
Becca's Story Part 4: TRANSPLANT DAY
How do you prepare yourself for your little 2 month old to be getting a Heart Transplant??? Well to be honest I have no idea! I don't...
Mar 14, 20226 min read
The Hard Conversations...
We planned a day for my two brothers, nieces, and my sister-in-law to meet Gracie. They had previously met Paisley very briefly. We met...
Mar 9, 20223 min read
Becca's Story Part 3: The Waiting Game
After we had gotten the news that JR was officially on the Transplant list time seemed to slow down. During this time there was not a...
Mar 7, 20227 min read
Frequent Flyer at the ER
Come October Gracie was still home, happy and working on building up her feeds. She was currently at 65mL/ feed 4x a day. It was still...
Mar 1, 20225 min read
Becca's Story Part 2: There is No Way I Am Having This Baby Today!
To say this second pregnancy was easy would be a big FAT lie. I started showing by 10 weeks(maternity clothes instantly), I had horrible...
Feb 28, 20225 min read
1,000 Appointments
We were home, happy and settling into our new norm for what could be a few days or a few months but either way, we were going to enjoy...
Feb 23, 20224 min read
Becca's Story Part 1: The Light in the Darkness, Only to Turn Dark Again
It was March 2020 and In the thick of COVID-19. My husband is a firefighter and first responder. With his call volume for civil on the...
Feb 21, 20225 min read
If Gracie Can Do This, So Can I
We were re-admitted on a Sunday and were hoping that it was simply a fluid in her lungs, a few extra doses of Lasix (diuretic) and we'd...
Feb 15, 20224 min read
Tyler's Story Finale: Emmy Recovers
Even though it didn’t look good on the surface, I knew in my heart that Emmy was going to be okay. I never once doubted that truth. “Your...
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