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The Blog
Feb 24 min read
G-tube or no G-tube? That was the question.
In honor of Heart Month and Wear Red Day for our heart warriors, I wanted to get a blog out!! It has been a while since I wrote about our...
Aug 17, 20228 min read
Every Day Magic
Quick update: After taking some much-needed time off I am ready to get back to blogs every two weeks. They will be posted every...
Jun 10, 20224 min read
Home Sweet Home
On January 13th our sweet Gracie was discharged from the hospital. When you are in and out of the hospital for as long as we were, you...
May 11, 20223 min read
Awkward Conversations
Short and sweet today! Gracie was making leaps and bounds, she was smiling every day, giggling, and all around my happy girl. She still...
May 2, 20224 min read
Moving In a Positive Direction
Gracie was slowly coming out of the delusional state she was in, had all of her chest tubes still in place BUT at least I could hold my...
Apr 18, 20226 min read
Unexpected Procedures
Staying the night with Grace was... VERY stressful. I knew the beeps and alarms like the back of my hand by now. I knew if things were...
Apr 4, 20225 min read
Surgery day #3
We arrived at the hospital bright and early so Gracie could be admitted to pre-op and we could get a few extra snuggles before they took...
Mar 28, 20224 min read
It Was Time...
I took Gracie in for our normal follow-up with cardiology. This meant another echo to check on her heart pressures and a lung profusion...
Mar 22, 20225 min read
Our Days Home Were Coming To An End
If you are not caught up on my blog at this time, GO BACK NOW! Nothing is going to make sense moving forward as I talk more about the...
Mar 14, 20226 min read
The Hard Conversations...
We planned a day for my two brothers, nieces, and my sister-in-law to meet Gracie. They had previously met Paisley very briefly. We met...
Mar 7, 20227 min read
Frequent Flyer at the ER
Come October Gracie was still home, happy and working on building up her feeds. She was currently at 65mL/ feed 4x a day. It was still...
Feb 28, 20225 min read
1,000 Appointments
We were home, happy and settling into our new norm for what could be a few days or a few months but either way, we were going to enjoy...
Feb 21, 20225 min read
If Gracie Can Do This, So Can I
We were re-admitted on a Sunday and were hoping that it was simply a fluid in her lungs, a few extra doses of Lasix (diuretic) and we'd...
Feb 14, 20225 min read
The Start to Another Nightmare
I was rushing Gracie to the ER. I continued to look back in the rearview to her baby mirror to make sure that she was still breathing. My...
Feb 7, 20225 min read
We were finally home as a family of 4, or so we thought
To say we did not think this day would ever get there n then here we were a family of 4 and our 3 pups. The pups were very interested in...
Feb 2, 20224 min read
Tylers Story Part 1: A Complex Form of Heart Disease
At 17 weeks, Emmy was diagnosed with Dextrocardia with Situs Inversus. In the simplest of terms, her heart is on the right side of her...
Jan 31, 20226 min read
Gracie was coming home
We received the worst news we absolutely could to this point. We had been through open-heart surgery, sepsis, and countless more things...
Jan 21, 20228 min read
Everything was perfect, Until September 9th.
Gracie was weening all of her meds, off oxygen, and overall doing amazing. But something was still off and we were about to find out exactly
Jan 13, 20227 min read
I was able to hold my girl again
Come August each day Gracie’s swelling was starting to improve more and more now that she was no longer trying to fight her horrible...
Jan 3, 20225 min read
I Started To Freak Out
Just as Gracie was all fixed up again we ran into another issue, but this time it had nothing to do with Gracie. Tim had been exposed to...
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